When we began our journey with the Eric D. Davis Sarcoma Foundation we never could have imagined the amount of supportive, interesting, generous and caring people we would meet. From EDDF supporters to leaders running other organizations we feel so lucky to have the chance to work together with so many amazing people to fight this forgotten disease. For that we are truly blessed.
That being said, we have been fortunate enough to meet the founders of the Cynthia Solomon Holmes Foundation (CSHF), based in Houston. This organization was founded in honor of Cynthia Diane Solomon Holmes, who was diagnosed with leiomyosarcoma (LMS) in April of 2010 and passed away just three months later in July of 2010. Cynthia was loved by everyone and she is remembered as someone who lit up a room with her smile and contagious laugh.
According to the educational section of the CSHF website, “LMS appears as a malignant form of smooth muscle, which is found in the lining of the gastrointestinal tract, blood vessels, skin and other organs. The abdomen, extremities and posterior abdominal area are the most common sites for leiomyosarcomas, but internal organs and blood vessels may also be affected.”
CSHF works very hard to generate awareness of LMS. Their objectives include educating the public on risk factors and treatments of LMS, along with raising support for research. Visit their website to learn more about LMS, including treatment and risk factor information.
We recently attended a 5K they hosted, and they were guests at the Party With a Purpose. While we are in different parts of the state, we hope to team up on future projects and work together to find a cure for sarcoma.