Profiles of Sarcoma: In Memory of Kayne

3

Aaron Kayne’s story, as told by his mom Kristen.

“a hero, an inspiration, an angel in heaven, and proof that miracles do happen.”

Miracle # 1: Kayne was born a fighter on July 6, 2008 weighing only two pounds and six ounces. His twin, Ashton, weighed even less at one pound and 13 ounces. They were premature being born at 28 weeks gestation. Miracle number one. Even after being so premature, he was perfectly normal with no permanent premature complications. A few months after birth, Kayne was diagnosed with cancer and no chance to live.

Miracle#2: After a second opinion, Kayne was diagnosed with Infantile Hemangioendothelioma of the liver and NOT cancer. After years of continued growth of the “hemangiomas”, he was referred to Cincinnati Children’s Hospital from North Caroina Children’s Hospital for treatment. It is extremely rare, but the possibility was there that they could be “transforming” to a deadly cancer known as Angiosarcoma.

As of October 2012, Kayne was beginning the process for a liver transplant. A lung biopsy was needed to rule out cancer. The biopsy showed metastatic Angiosarcoma and he began his fight October 12, 2012.

Miracle #3: The cancer was taking over his liver after treatment failed. He was put on palliative/comfort care. We then decided to try an experimental chemotherapy regimen. Kayne suffered immensely from a lung obstruction from the huge tumors. Kayne briefly left this earth but God gave us the greatest Christmas miracle. He pulled through amazing all of his doctors and was able to live 14 months we never thought we would have.

To go from COMFORT CARE WITH NO CHANCE OF SURVIVAL to his normal sweet self in a few months is the greatest miracle that I have ever witnessed.

In July of 2013, Kayne’s cancer returned in his liver. We were out of treatment options, but he became the first pediatric patient to try Mekinist, which targeted his genetic mutation. This gave us a few more precious months with our hero. He earned his wings, peacefully, February 11, 2014 surrounded by family and friends.

Although his life was always full of needles, surgeries, procedures, and scans, he always had a smile on his face that infected everyone’s heart and soul with pure joy. He showed me a love greater than I could have every imagined and he knew I loved him just as much. His short five years on earth taught me what it was to truly love and be loved, that miracles do happen, and to never give up.

Thank you Kayne, for showing me what it feels like to truly live.

 

9 Comments

  1. Cathy Swartz | July 14, 2014 at 2:43 pm
     

    What a beautiful memorial to your little man. You truly are a super Mom and will continue to be one for Ashton. I am so thankful that you have shared and are sharing all of your pictures and feelings for everone. God bless you and your family–and especially your Guardian Angel, Kayne.

    • Kristi | July 15, 2014 at 11:31 pm
       

      Thank you for all of your love and support during this part of our lives. I had to share his sweet smile. And so thankful his story has touched so many people. It brings me so much comfort.

      I can’t thank you enough for following us during this journey.
      Love,
      Kristi (aka Kayne and Ashton’s mom)

  2. Cathy Dentzer | July 14, 2014 at 2:53 pm
     

    Sweet little Kayne. I will never forget you little buddy. Your cute little face i would see every morning in the pictures your mom sent with your shirt and bracelets. Your bracelet with Prayers for Kayne hangs on my dresser and i think about you often. I never had the opportunity to meet you and Ashton and your mom but i said a lot of prayers for all of you. Now you have your wings and are in the arms of God. You are missed so much here on earth but you couldn’t ask to be in a better place than in the arms of our heavenly father. Rest in Peace little one. You will forever be in my heart!

    • Kristi Hanchey | July 15, 2014 at 11:34 pm
       

      Thank you for always being there for prayers, love, and support! ❤️❤️❤️

  3. Brandy Jones | July 14, 2014 at 2:55 pm
     

    I never met this Angel, but I have followed him and his Mom and Brother, He was absolutley an amazing little boy that many people love! His Mom is an inspiration to alot or other Moms…She is my inspiration and my hero! I hope and pray if I ever have to go through what she has that I will be as great and as strong as she is! ❤

  4. Sara Burnette | July 14, 2014 at 4:11 pm
     

    Kayne was my inspiration and my hero as I faced my diagnosis of
    angiosarcoma. He was simply the most brave, sweet, kind little
    fighter and I wish I had the chance to meet him, but I know I will
    one day. Kristi and Ashton, you are always in my thoughts and
    my prayers. Thank you for sharing Kayne with all of us. God Bless
    you all!

  5. Katherine F. Cannon | July 14, 2014 at 4:26 pm
     

    The strength you have showed since your beautiful babies were born has inspired so many people. Seeing you with Kayne in the hospital always smiling and positive. ..
    But as a mother I knew your heart was being shred to pieces. The love came shining through. I am so proud of you Kristi. Randy and I wear our Kayne red shirts every Tuesday. Huggs to you and Ashton.

  6. Johnnie Carden | July 14, 2014 at 6:57 pm
     

    Kayne was truly a blessing to many people who never met him, I am one of those people. A short life on this earth but truly a hero to a lot of people. He will be sorely missed on this earth with that infectious smile! Thank you so much for sharing and God bless you and your family!

  7. Kristi ~ Kayne and Ashton's mom | July 15, 2014 at 11:48 pm
     

    Thank you all for loving us, supporting us, praying for us, and believing with all your might. I started his page to simply have more people praying for him. It has become so much more than that. It’s how I would cope with all that was going on. It kept me from feeling so alone and gave me more hope. Even still, I find the most comfort in knowing he has touched so many, inspired so many, and was truly loved by so many. His miraculous story was worthy of being shared and I am so thankful I was able to. His precious smile was definetly worth sharing. Thank you all so much. I’m so grateful for each of you.

error:

Enter your pledge amount

$

Donate